After singing along to this song by Jordin Sparks I realised some of the lyrics reminded me of MS... MS is kind of like having a tattoo - it'll always be there... we've got to learn to live with it... (hopeul for a cure though!!) So I decided to make a video to show my thoughts using the song and some pictures! (PS all the pictures of tattoos are 'photoshopped' by me!)
UPDATE: since putting this video on here and listening to the song more and more, the more the lyrics remind me of MS, please ignore the orange/white connection with the lyrics and just kind of look at the pictures and all of the lyrics. pretty much every part of this song makes so much sense.
and also please join my facebook group: "I have Multiple Sclerosis and I'm Fabulous!" http://www.facebook.com/group.php?gid=41790097757&ref=mf because we are :)
Hey i'm hayley.
I live in Coventry, England
I thought, seeing as my MS Music Video is getting quite popular i'd better write a little bit about myself in here :)
i love messing about with windows movie maker and songs, when i set my heart on a project i spend weeks or months making a video. usually just for family and friends to watch and laugh! (one of my most favourite i couldnt get onto youtube for copywrite reasons d'oh) but it's on facebook and got a few laughs :) that was my aim.
actually most of the videos i managed to get on youtube have now been audio disabled too grr.... lol. but this one has been allowed god bless sony entertainment :) raising awareness through the art of music is fabulous! x
my Multiple Sclerosis Music Video was done originally just for me to watch personally really. i didnt plan to get it onto youtube as such. and when i did i wasn't expecting so many people to view it!
i'm so happy people have watched it and connected with it so much. the thoughts that go through your head when diagnosed with MS are quite complex. i pretty much summed them up in a very general way using the lyrics of the tattoo song.... the main one is to carry on with life and leave it behind you. yet just like a tattoo, we'll always have it? meh!
when it's got more views i'm tempted to send if to jordin herself to see how much her song has impacted us with MS.... and she doesn't even know!
the lyrics to that song are so fitting.
So anyway, I have MS. i was diagnosed in 2005 after a relapse where i went numb on the whole right hand side of my body and pretty much lost the use of my right arm for a little while. i had the MRI, the lumber puncture, the blood tests, the examintions (even nominated myself for trainee neuros!) i had NO idea what MS was back then. i broke down crying a couple of times while learning about it during the months afterwards...but.... life goes on! there are no answers with MS. i've always took 1 day at a time and i will continue that way. ive been ok since recovering from my relapse - fingers crossed. i get some symptoms here n there, and had a bit of a flare up earlier this year after an infection. i will have a chat with my neuro at my next yearly visit :) i will always expect it to happen again at some point, ya have to prepare yourself for the worst. but this makes you appreciate the good times so much more!! :) i'm staying positive. i'm ready for anything MS throws at me.....
so anyway, comment and message me!! speak soon ;) x